New foundation focuses on blood disorders in women and girls

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A new, nonprofit advocacy and education foundation?The Foundation for Women and Girls with Blood Disorders (FWGBD)?seeks to promote correct diagnosis and optimal management of conditions such as von Willebrand disease, thrombophilia, sickle cell disease, and anemias at every stage of life. MORE

A new, nonprofit advocacy and education foundation-The Foundation for Women and Girls with Blood Disorders (FWGBD)-seeks to promote correct diagnosis and optimal management of conditions such as at every stage of life.

The foundation, based in Montclair, New Jersey, was established by experts in blood disorders and women’s health to provide a multifaceted array of educational programs for healthcare providers. A December 1 Webinar, Women and Bleeding Disorders, will officially launch the foundation and its full Web site. In the meantime, providers can go to a preview Web site, www.fwgbd.org, to sign up for news and information and reserve a place for the Webinar and a satellite symposium on December 9, preceding the 53rd American Society of Hematology Annual Meeting and Exposition in San Diego. Both CME-accredited programs are jointly sponsored by Duke University School of Medicine and FWGBD.

“Women and girls with blood disorders face unique issues and medical consequences at different stages of life,” says Andra James, MD, MPH, a founder of the FWGBD and the Women’s Hemostasis and Thrombosis Clinic at Duke University Medical Center (Durham, North Carolina). “These issues often get buried and fragmented in various sources. The purpose of the foundation is to create a single site and source where physicians and healthcare providers can go to obtain information.”

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